Nolanville residents Siblings Xavier, 8, left, Josiah, 11, and Cariel Rentas, 10, all born with a rare disorder called Hermansky Pudlak Syndrome, have organized a fundraiser to collect coloring books for McLane Children’s Hospital patients.
Siblings Xavier, 8, left, Josiah, 11, and Cariel Rentas, 10, pose in front of their home in Nolanville. The three siblings, who were born with a rare disorder called Hermansky Pudlak Syndrome, have organized a fundraiser to collect coloring books for children in the McLane Children’s Hospital.
- How to help
Drop off donations of coloring books and crayons to:
The Rentas family, 11 a.m. to 1 p.m. on Dec. 14, at their home, 306 Oak Ridge Drive, in Nolanville.
Five Below in Market Heights, located between Ross and Dick’s Sporting Goods
Fountain of Beauty Salon and Spa in Temple, 2001 S. 57th St. in Temple
Nolanville Police Department, 100 N. Main St., in Nolanville
Central Bell County Fire and Rescue, 100 N. Main St., in Nolanville.
- What is Hermansky Pudlak Syndrome?
HPS is a rare disorder estimated to affect one in 500,000 to one in 1 million individuals worldwide. The disorder appears more commonly in Puerto Ricans.
Affected individuals typically have fair skin and white or light-colored hair. Oculocutaneous albinism reduces pigmentation of the colored part of the eye, the iris, and the light-sensitive tissue at the back of the eye, the retina. Oculocutaneous albinism also causes vision problems such as reduced sharpness, rapid and involuntary eye movements, and increased sensitivity to light.
People with Hermansky Pudlak Syndrome also have problems with blood clotting that leads to easy bruising and abnormal bleeding. Affected individuals have abnormal platelets, which are blood cell fragments necessary for normal blood clotting.
Posted: Thursday, November 28, 2013 4:30 am
Posted on Nov 28, 2013
NOLANVILLE — Children ranging from 8 years old to 11 don’t typically spend a lot of time doing charity work. They aren’t typically blind, either.
But that’s exactly the case for three siblings in Nolanville: Josiah Rentas, 11, and his younger sister Cariel, 10, and little brother Xavier, 8.
Or, use your
Contact Vanessa Lynch at firstname.lastname@example.org or 254-501-7567.
Thursday, November 28, 2013 4:30 am.